World Down Syndrome awareness day

 I am proud to announce that i am honored and happy that i am part of this, I am Heather Kylene, and i have a story to tell you all. 

I was born on October 1st 1978. Libra.

I have learned over the years of my disability, I have mosaic down syndrome. This is a rare type of down syndrome. There are two other types Translocation (nondisjunction) and trisomy 21. The creator Robert Lange Down, had learned and discovered a third type. And that is Mosaicism Down Syndrome. I was very sick when i was a baby, and for the past couple of years i have been sick and my mom couldn't find what was wrong with me. not even the doctor that delivered me either. it actually did take some time to discovered about that extra chromosome. The doctor that delivered my baby brother 4 years later 1982. Eric my brother was very sick as well too. And when he asked my mom if there was someone else in the family that was sick too, and that's when mom mention me. and when i was being tested for my sickness, the doctor did a chromosome test, and he had discovered an extra chromosome. 

For years I have struggled, and with my learning skills as well. I don't always get it right away. it takes me a little time as well to finally figure it out. sometimes i don't always feel like a normal person. But i do okay. I don't have many friends. My family is passed, my parents and my brothers. it's just me now and my younger sister too. We don't talk because its a long story ok. 

I've also have done special Olympics. I have done that for many years now, and had officially retired. Do i miss it, yes of course i do. Do i want to return to the sport? of course. question is how? my mom has always done that for me. 

Do i have any tattoos or piercing? yes. My ears of course. And yes on the tattoos. I have always like. and have thought about and now i have 14 total of tattoo's I really wasn't expecting to have this many. i only wanted two tattoo's. but it's like what they say, once you have it and you want to say no more. But i keep getting more. I have to stop now. my latest one is recent and its a best friend quote tattoo, " There are two friends, in one soul of two bodies." 

in my conclusion: Be kind to one another

Libertad

 Hello again, 

It is now getting a lot closer now to moving day. Last time i posted was weeks ago and how long it will take for Balki ( my precious cat) will be moving into our new home. I like to call it our forever home, But i can't because you never know what could happened years from now. But we are thrilled about our new home. I have brand new dishes that will be coming soon. as of this weekend from amazon. I am still not happy about moving to Glendale Az. I love Phoenix. It's my home and it really is more convenient for me. But i know that someone else i know is more happy about this. It will take me time and to adjust to living back in Glendale az. I have lived there before. When i first moved back to Arizona 12 years ago next month. 

For a long time i have always wanted a lot of things, for my next apartment, I have always wanted to live in a tall building apartment. and have big huge windows and high ceilings. When i have came across Libertad apartments on google online and had read everything about this place and how brand new it is. being accepted for it too. I actually got all excited and everything. And i was able too see it from the outside. My friend and roomie, well she is my best friend. She surprsed me and had taken me to see the property from the streets, Because i wasn't able to get on the property yet because its still under construction. And it looked like all they need to do now is put in the road to the property. Its been weeks now and i now i have a week and half left to move in. Still waiting on the keys to my new place. I should hear from them any time now. and that phone call or email to let me know when i can go and pick up my new house keys. 

Praying to know by this weekend or next week. 

take care for now.

Heather

Superman

 Hi everyone, I know I have been away for quite sometime. But all that is gonna change. I am thrilled to announce and give you all great news. 

First is I like to share is that I am thrilled to announce that I have a brand new apartment and I mean brand new because libertad Apts is a new complex that was just built last yr. 2020. However the location is in Glendale az, not Phoenix I really don’t want to move to Glendale, I love 💕 living in Phoenix. It’s my home. But I knew that I needed to find a better and lot cheaper for me to afford. But when I came across the libertad Apts in Glendale. And seeing the price for one bedroom. I just knew this is my new home for me and Balki. ( my cat) 

We have been accepted for this apt. And now I am excited about this move. I haven’t seen the inside yet. Because the complex is still under construction 🚧 about few weeks ago I got a call that the construction 🦺 is delayed by the end of March 2021. I still have about five weeks left. And then hopefully I will be in my new home. Ok 

Superman story 

I am beyond thrilled 😄 with excitement when I heard that jcfilms studio is having a grand opening ceremony in Tempe. I also found out that a famous celebrity will be there to cut the red ribbon 🎀 Dean Cain, yes that’s right from the hit tv show  Lois and Clark the new adventures of Superman. The day was February 20, 2021 ( Saturday) I went to this festival and when I got there. I wanted to make sure that I had the right location. And I did, and also wanted to make sure that Dean Cain is really here. And he is, I was so excited 😆 that I get to meet my all time superhero 🦸‍♂️ and I was hoping to meet & greet too. It was amazing 🤩 and that my biggest dream wish came true. I have been a huge fan of Dean for so long. And it finally came true. I still can’t believe that I met him. And I also got his autograph ✍️ and we talked too. And I had him signed my first season of his show Lois and Clark. I will never forget this day. This will always be my best favorite day ever. 

Concerts In 2020

I am looking forward to this year, why you ask? Because I have two concerts lining up already, Later this month myself and my bff Gerilyn are going to see Celine Dion at the gila arena river. We are looking forward to seeing it. I am so excited because I have been wanting to see Celine Dion for a very long time. And now this is my chance to go. Also i am also going to see Rascal Flatts. later in the fall of October. Their final farewell tour. Yes, I have found out recently that they are being disbanded. After 20 years of great music. Rascal flatts will be going their solo careers. I never really got the chance to find the full story and why they are being disbanded. But i will never forget their greatest music. Life is a highway... My wish... and many more of their greatest songs ever written. I am also interested and want to go and see the Backstreet Boys as well, also in October. Not too sure yet. Just have to wait and see.

I have to say is that I am doing well. for myself. Minus a few things but its gotten better for me. And i have to say how proud that i have become and where i am now. I absolutely love my new loft apartment. its been six months since i move in. I am going to sign for another yr lease. But next yr i might have to move again. I just wish they wouldn't have to keep raising the rent every yr. It would be nice for it to stay the same... And that way i wouldn't have to move.

Going to concerts is the best thing that i love to do every year, But there are times when i can't go. I like to see about taking vacations. And go places that I've never been to yet. Like going to Los Vegas. I am hoping to go this summer, not too sure yet. My cousin Carrie has told me that their is a semnar that she wants to go too. I, however would love to go and see a show, like Terry Fator. I would love to see him perform.
And also spend time at the pool and some of the casinos and hit the slots.
anyways I am going to relax and enjoy my day off from work.

2020 New goals

I would like to say is that everything is coming along great for me, and how my life is going. I have great things that are coming along great, Like this brand new apt that i am in now, since Sept, of last 2019. its been 4 months now and l love my new place. I plan to be here for at least two years. The rent here is good. However this place is good and the neighborhood is okay too. The other place i was at just wasn't working out for me, and i didn't like the way i was treated my last couple of months. before i moved. I am thrilled to be out of that place and into my new one now. I am in my dream home now. question is i just don't know how long i can live here. two yrs here does sound good. But i have thought about something more and different, like having my first house that i like to call home. forever. But things doesn't always work that way.

You can't always seem to get all the things that you want in life, I don't have everything. like a car and a license. I like to but its the expensive that are included to owning and the responsible of taking care of a car. I think about it every now and than, just not all the time. Anyways.

This job i have working at the legoland LDC. at the mall. is going very well. I have been with the company now since April of 2019. 7 months now. I am loving this job. Its not my dream job. But i also need the work and its working out good.

On a side note the only negativity i have is my issue with my eating binge problem, I don't understand why i am always hungry and seem to over do it. I been to one eating disorder support group once. couple yrs back. I just didn't stick to it. I know i should. Maybe this is why my left knee is hurting me more now. What i need is the push and have someone help me with this problem that i have. I don't want this. So my new goal is to try the support group again and do what ever it takes to make this right. Checking on new info about this.
thank you.

2019-2020

Sorry that i have been away for a while now, sometimes these things will happen. But anyways i am here now and have some updates and news for you all. Now first thing is i was finally able to move out of that apartment that i was in on Indian school rd. That place has gotten worse. And i would not recommend that place anymore. its gone from bad to worse. But after i have left, i heard new management has bought the place. Maybe the new owner will fix that place up. anyways not my problem anymore.

I am currently in my new loft apartment home. Yes, you heard me right. I am actually living in my dream home now. having an upstairs bedroom is amazing, and its an open concept with high ceilings too. I have always wanted a place like this, and now i am in my dream home.

Actually, it not just my dream home but i have other dream homes as well too. I have always wanted to own my house, with a least 3 bedrooms. And have the family i have always wanted. But with my fertility issues i have, my family won't happen, I wish it has. But there is nothing much that i can do about that. I was shattered when i have received that news couple years back. Anyways we are not suppose to get emotional here.

There is one thing that did happen about a month ago, I no longer keep in touch with my own little sister anymore, not after what she said and called me. Its very hurtful to me. She actually wishes that i was dead instead of our brothers, and calls me "The bitch of a retard".
I can't seem to get those words out of my head right now, I am trying so hard to block it and want to forget it. I can not forgive her this time. We are now estrange sisters.

Since that has happened, I finally got the courage to start a story, my story about my down syndrome. and how i have been through it. on my youtube page. If you are all interested and want to see my story. Plz go to sugargirl1978@gmail.com I am trying to get my story out there and would like to reach millions of people around the world. And to know who i am and how i have struggle and what i have accomplished in my life as well too. And I would love to see it reach to Ellen Degeneres, and Oprah Winfrey too. I admire these two lady's for a long time, And that i have been trying to win tickets to her show. Ellen Is amazing and i love what she does, and how she helps family. Sometimes i wish she would do that with me, I would of love that. But i know that doesn't work that way. But it would of been cool and awesome to have. But i have always wanted to meet Ellen Degeneres. Someday i will. I'm not giving up.

Balki, My precious cat. He is amazing and knows how to get me to smile and laugh. And the way he sleeps too always gets my attention too. I love it. And the way he buts heads with me and gives me love bites too. I love it. Plus he does that and wakes me up to just to feed him in the morning.
Balki did had a best friend, wags. He was his dog buddy from a friend and neighbor too. But wags has passed away recently. He will be missed. Our friend Roxanne has moved again back to Michigan. We will miss her and hope she will come and visit us.

Anyways this is all i have to say for now, Hopefully I will be back on my blogger more often after i get the wifi again and the cable too. thank you... and talk soon.

Kylene

fertility Issues

I never thought that i would do this, why i kept this a secret for almost two years now. My family doesn't even know about this. I just couldn't bare to tell them. Because this still hurts me to this day now. I have always wanted a mini me, a daughter or son. I would of love to spoil my child. and to give as much as love and attention to my angel. My daughter would of have the name Aurora, (Roe) for short. and if i had a boy, it would of been Adam.

But in my case and because of the disability that i have, and also because of my age as well, I am not able to have kids. I am fertile. I have my good days about this, and then i don't. it gets to me. But i know i would of been so lucky and happy. That i will have a miracle baby, just like I was. Because of my Down Syndrome, there would of been a chance that my baby would have Down Syndrome. I do carry the genetics. And it is a possibility.

I have been two fertility doctors, and i would get the same answers. Two years this December I have adopted a stray cat, He was left outside one day and he was only a couple months old, he is my baby now, We pretty much adopted one another. I have given him the cutest name ever, I don't know if you know this show or not, Perfect Strangers. It stars Bronson Pinchot and Mark-lynn Baker. they play cousins, Balki Bartokomous and Larry Appleton. Well, I name my cat Balki B. and my last name too.
Balki is a wonderful cat, He is my feline son. In my heart I do have a son, he is just my precious feline son. And i love my baby so much.

One more thing, once i post this blog, it will be seen by a family member. I think i am ok with that now.

Thank you.